michaeldthomas: (Caitlin 10)
[personal profile] michaeldthomas
1- Caitlin had more seizures on Friday. We didn't have to use her emergency Diastat, but we now know she's definitely back on that monthly seizure schedule. On the plus side, it's still only one bad day a month. On the minus side, they're still massive seizures. Caitlin's Epileptologist/Neurologist increased her Sabril in response. Thank the maker that Sabril is now FDA-approved. That would have been a financial disaster two years ago.

2- Since I didn't have to use Diastat, I spent the whole day hovering over her and watching every twitch and movement. Lynne came home early to help. Yeah, we've had better days.

This colored our whole weekend. Once the crisis ended, we had plenty of time to process and be miserable-- especially once Caitlin went to bed each evening. This is why we fill our lives with work and distractions. It's very hard to watch our little girl go through the epilepsy and pain. It's tough when we stop long enough to think about Caitlin's future. We know that her best days are very likely already behind her.

3- On a cheerier note, crazy doors are opening for Lynne left and right. It seems that every time she completes an awesome project, two more take its place.

4- I'm revising this week. Along with my mid-grade fantasy novel, I'm working on my most recent short story. Most of my crit partners have sent me their notes. Now I just need to work up the courage to read them. :-)

5- The one good thing that happened on Friday came in the mail. We spent the weekend consuming our Kinda and Snakedance DVDs. We still love the hell out of those stories. We also picked up a copy of Sunday in the Park with George on CD. Now that I'm in my mid-30s, I'm really learning to appreciate Sondheim.
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michaeldthomas

August 2011

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