michaeldthomas: (Caitlin 10)
[personal profile] michaeldthomas
It's time for a Caitlin update. Things are more or less stable. She's still a happy little lady.

Good Things:

1- Caitlin has only a 1/2 day of school on Monday. She survived 2nd Grade. :-) Summer school starts the next week.

2- She still had a monthly seizure two weeks ago, but it only lasted a minute. Hopefully, this means the new Sabril med levels are working.

3- Caitlin was approved again for the state supplemental insurance program. Hooray for us staying Lower Middle Class!

4- She will have a back brace in a week. She totally aced the fitting.

5- All of the changes for state employees didn't affect our health insurance program.

6- She has no pain in her hips. In that way, the surgery worked.

Bad Things:

1- Her knee still hurts from her holding it funny during the recovery from the hip surgery. It also swelled up last week due to intense PT. :(

2- We found out yesterday that Caitlin will have a new Special Ed teacher next fall. This was a surprise. Her current teacher is one of the only people in the district who knows how to program and incorporate Caitlin's Dynavox communication device. I guess we'll see how the district plans on handling this.

3- After 7 years, we're losing Caitlin's Case Manager at our primary health insurance company. We'll miss her. It's scary since she was a pretty good advocate for us in the system.

4- We have to change Caitlin's feeding tube button tomorrow. Not tragic, but always unpleasant.

5- I need to start the process of getting her a new wheelchair.

So overall, things could be much worse. Caitlin still has a wonderful quality of life for a girl with Aicardi syndrome.
From:
Anonymous( )Anonymous This account has disabled anonymous posting.
OpenID( )OpenID You can comment on this post while signed in with an account from many other sites, once you have confirmed your email address. Sign in using OpenID.
User
Account name:
Password:
If you don't have an account you can create one now.
Subject:
HTML doesn't work in the subject.

Message:

 
Notice: This account is set to log the IP addresses of everyone who comments.
Links will be displayed as unclickable URLs to help prevent spam.

Profile

michaeldthomas: (Default)
michaeldthomas

August 2011

S M T W T F S
  123456
78910111213
14151617181920
21222324252627
28293031   

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jul. 28th, 2017 10:46 am
Powered by Dreamwidth Studios