michaeldthomas: (YANA)
Nature continues to assault us. Tornado-producing thunderstorms are rolling in with a cold front that might produce flurries in a couple of days. Meh.

In other news, I am starting to pull out of my post-resignation funk. I know that I did the right thing for me and my family, but it still feels terrible. As [livejournal.com profile] rarelylynne say, there were Aicardi conferences before me, and there will be conferences after me. It's still a world of suck.

I haven't been able to write a lick in days. I'm hoping to get some writing in tomorrow.

Just Finished Reading: The Last Unicorn by Peter Beagle
Currently Reading: Hyperion by Dan Simmons
michaeldthomas: (Caitlin 2)
Caregiver Edition.

1- There was lots of Aicardi Conference Planning silliness this week. It was the pretty typical committee breakdowns with miscommunications and misunderstandings. I am fairly aggravated by things at the moment. It will be sorted out in the end, but at the moment it’s just more fodder for me leaving the “organization” after the conference.

2- The City of DeKalb Advisory Commission on Disabilities meeting went well. It looks like the mayor is reappointing me for another two years. We have some great plans for the future. The only crazy thing from this meeting was the commission having to deal with an individual who is going around town pretending to be a member. It wouldn’t be so bad if this individual wasn’t aggressively confronting business owners and landlords and threatening them with his nonexistent power to levy fines. We are tackling this the way every commission tackles issues; we are issuing a strongly worded letter.

3- Caitlin had a good, healthy week. We were even able to go out and walk in Downtown DeKalb thanks to some good weather. We are getting a Tapas restaurant there, which is kind of cool. It was a nice walk, but it is frustrating that a good number of businesses aren’t even remotely ADA compliant.

4- Caitlin’s transition planning has started. Next fall she will be in Kindergarten at a new school. Change frightens me.

5- Caitlin’s OT is also leaving the Elgin Easter Seals. This really sucks. We like her a lot, and she’s been with Cait for years.
michaeldthomas: (YANA)
The Bard via Project Gutenberg:
Add Your Own Hump )
michaeldthomas: (Indiana Jones)
Here is my upcoming week:

1- Watch the Cubs opening day.
2- Attend the ceremony for the new display cases in the NIU Rare Books Room.
3- Give the eulogy for my grandmother at her memorial mass.
4- Watch Caitlin while [livejournal.com profile] rarelylynne is gone for a three-day leadership workshop.
5- Finish writing the climax of my novel.
6- Talk about the brilliance of Tim Powers's Last Call at the SF Book Club.
7- Finalize the agenda for The Aicardi Syndrome Family Conference.
8- Get Caitlin to all of her therapies.
9- Attend Odyssey Con in Madison.

I picked a bad week to stop sniffing glue. ;)
michaeldthomas: (Default)
Real life has been rough for the last two days. Yesterday was our yearly run to the Pediatric Ophthalmologist. Caitlin was in a good mood and behaved for all of the testing. Nothing in her eyes has degenerated any further. Caitlin was also able to show the doctor how well she is using her vision. Considering that the girl has damaged retinas and optic nerves, she’s taking in quite a bit.

We then went to see my grandmother at the hospital. Things are very bad. It was extremely difficult seeing her in that condition. This is not the first time that I’ve been there for a loved one’s end of life, but it’s always a stomach punch. She still recognized me, but she’s otherwise fairly unresponsive. My grandmother is a shell of the magnificent woman that helped raise me.

After that we rushed home and picked up [livejournal.com profile] rarelylynne. I then went to The City of DeKalb Advisory Commission on Disabilities meeting. It seems that the commission will survive the current city budget crisis.

Today I was digging myself out of Aicardi Syndrome Family Conference business. I think that I wrote about 30 emails today. At least everything with it seems fine so far.
michaeldthomas: (Barcelona!)
A series of happy events...

1- Caitlin has been very giggly the last few days. She’s had great therapies, and has been laughing up a storm. She was especially taken by a game during speech therapy that involved a motorized penguin that ran on a track and offered fish. Marie cat was quite fixated on it. Apparently, Marie thought that the fish were real. This cracked Caitlin up a lot.

Caitlin’s obsession with the singer Neko Case also continues. When I put Neko on in the car this weekend, Caitlin yelled out, “’Eko.” She then started to sing along. I love my daughter, even though she’s probably cooler than me.

2- My grandmother is going home. She still has many health problems, but at least she’s stable enough to get out of the hospital.

3- Out of the blue, a local parent of another girl with Aicardi Syndrome called me today. She has organized a group of volunteers for the conference, thus taking that off of my plate. I can’t begin to thank her enough.

4- The stuff with Mad Norwegian Press is going well. Thanks to my work with MNP, I am now a member of the Doctor Who Information Network (the Canadian fan club) and received my first copy of the fanzine Enlightenment yesterday. It was a very pleasant surprise.

5- I finished writing another chapter of the novel this morning. I am at the ¾ point. As the kids would say, that is made of win.
michaeldthomas: (Default)
It’s a mixed day. First, the good stuff.

Caitlin finally has her augmentative communication device at school. With some work, Caitlin should soon have some new avenues for communication. It’s pretty exciting. The specialist that the district hired is a friend from LINC, so it was a very pleasant training. Caitlin’s two speech therapists are meeting on Saturday to further discuss the programming. It’s been a long wait with some bumps in the road, but we’re finally here.

The conference planning seems to be under control. That’s a happy thing.

Torchwood Season 1 should be arriving any day now, giving [livejournal.com profile] rarelylynne and me hours of cheestasic entertainment.

Now, the bad. My grandmother has been moved out of ICU, but they’ve discovered an abdominal aortic aneurysm. The doctors also think that there are further problems. I’m getting all of this through the family telephone game, so the details are hazy.

My thoughts go out to Heath Ledger and his loved ones. I understand he was young and a star actor, but I wish the press would move on to something else other than baseless speculation about how he died. I know, how about they talk about the 5.4 million non-famous human beings who have died in the Democratic Republic of the Congo since 1998 due to conflict, malnutrition, and disease (http://www.cnn.com/2008/WORLD/africa/01/23/congo/index.html).
michaeldthomas: (Default)
I’m fairly exhausted today. Yesterday was supposed to be a relaxing day off with the family. No dice. Here is a quick list of things that sucked yesterday:

1- My daughter spent Sunday night vomiting. The details are over in [livejournal.com profile] rarelylynne’s blog. Luckily, Caitlin was well for the rest of the day. This morning she was a bit out of it, but otherwise fine.

2- I went to the dentist, got my teeth cleaned, and they found two small cavities. Not a big deal in the grand scheme.

3- I spent much of my day on the phone doing conference planning. The pressure is increasing with some deadlines approaching.

4- My grandmother went to the ER and was admitted to the ICU. This is hitting harder than I expected. I am very close to my grandparents. They were a large part of what was stable in my childhood. For the past couple of years, my grandmother has been suffering from dementia/Alzheimer’s. She just turned 80, she had a major heart attack a few years ago, and we’ve been expecting health problems since she’s barely eating.

Yesterday, her face was swollen and my family took her to the hospital. They’re still running tests, but she was dehydrated and suffering from a serious bladder infection. Now I’m just waiting for phone updates. She will probably be fine, but it just feels like we’re entering that stage of rapid decline.

Otherwise, thing are well. The work on the gutters has begun, Caitlin should be getting her assistive communication device this week, and Torchwood was good. With some luck, I might even get some more writing done.
michaeldthomas: (Indiana Jones)
Well, it’s back to work. [Bad username or site: @ livejournal.com], Caitlin, and I had a very relaxing holiday break. The only thing that was really stressful was the problem with the ice dams on the roof. As of this morning, my epic “discussion” with the city is over. It took about 8 months, but the city has finally commissioned a company to replace the gutters, soffit, and fascia. The work should be done in the next two weeks. This hopefully will keep the melting ice and snow on the outside rather than coming into our house through the front door frame. There will even be enough money from the grant to replace about 7 windows. Hooray for being poor enough for HUD grants!

Caitlin is back to school. Today went well, though she was a little grumpy to have to work again. We’re off to Easter Seals in a bit. It’s a 45-minute trip on country back roads, so I’m hoping that the predications of thunderstorms are erroneous.

The writing is going well again. I’m making that final push on the first draft of the novel. I feel very confident that I will get it done in the next few weeks. I’ve also been assigned another essay for Fluid Links. I’m pretty jazzed about this essay. I think that I’ve complied some good notes for it.

The Aicardi Conference planning is in full swing. Everybody seems to be very excited about the process. I hope it lasts.

Just Finished Reading- Dragon Champion by E.E. Knight (It was marvelous)
Elric of Mellnibone by Michael Moorcock

Currently Reading- Crystal Rain by Tobias Buckell


michaeldthomas: (Default)

August 2011



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