michaeldthomas: (Default)
Yesterday was Caitlin's regular appointment with her Pediatric Epileptologist/Neurologist at Children's Memorial Hospital in Chicago. We made the man positively giddy with our total lack of news. Caitlin has been seizure free since February. She continues to excel at school, and her general health and well-being are exquisite. This gives our doctor nothing to do, and he couldn't be any happier.

When Caitlin first met him over five years ago, her infantile spasms were out of control. She would have 5-7 series of spasms per day, each lasting 5-10 minutes. She was filled with barbiturates that did nothing but make her a floppy baby zombie. We've come a long way.

The main thing we talked about was the FDA approval of her anti-epileptic drug last week. We've been importing it from Canada and the UK for the last 4 1/2 years at a cost of about $1800 per year. It wasn't even tax-deductible. Now, our insurance and medicaid waiver should pay for all of it. This is kind of a good thing. :-)

Since our appointment only lasted 20 minutes, we decided to walk to Lincoln Park Zoo. It was the kind of gorgeous day that makes you think that Chicago is the greatest city in the world. I forgot how much I love that zoo. It's the perfect size for a nice day out. Not to mention, it's also free. Caitlin had a great time. She especially enjoyed the bears and penguins. She actually got angry when I informed her that she couldn't swim in the penguin habitat.

It was a perfect way to end our summer.
michaeldthomas: (Caitlin 08)
I just got off the phone with the case manager for the insurance company. We're through a couple of the hoops. We'll see what happens next. I have a good feeling about the Oral Motor/Speech Therapy services getting reinstated without a lengthy appeal process.

Things are quiet around here. I took Caitlin to the playground yesterday. My little girl loves to swing. I was the same way at her age. I think we were both meant to fly. :)

[livejournal.com profile] rarelylynne is down in Champaign/Urbana again today. I think she's burning more Dan Brown books. She's still giddy about her ride in the fire truck on Tuesday.

Lynne was hopping around the house last night after reading [livejournal.com profile] agentxpndble's Torchsong con report. Carole Barrowman apparently mentioned that she had contributed an essay to Chicks Dig Time Lords during her Q & A. It finally dawned on Lynne that she's co-editing a book that will probably end up on a shelf in John Barrowman's house. Between that and seeing the cover art for Special Collections 2.0, Lynne was a mighty ball of squee.

I actually managed to get my final rewrites done on a short story while Caitlin watched an endless supply of Hannah Montana episodes. Lynne needs to do a quick copy edit, but it's otherwise finished. I'm sending it to Asimov's first. I'm expecting a rejection, but you never know.

Home Sick

Jun. 1st, 2009 03:28 pm
michaeldthomas: (Caitlin 08)
All three of us have a cold. Blech.

Not much going on around here. I got a couple of critiques back on a short story. This morning I think I came up with a way to fix the broken parts.

Unfortunately, I'm not going to get a lot of writing time for the next couple of days. Caitlin has doctors' appointments on Tuesday and Wednesday. Wednesday is her big swallow study. She gets to eat by mouth for the first time in five years. While she eats barium-laced food (yum), they x-ray her to see if she's still aspirating. If Caitlin shows that she's made some progress, our appeal for Oral Motor/Speech Therapy should be successful. Please keep your fingers crossed.

Other than that, I'm reading Dreams Underfoot by Charles de Lint for the first time. This is the book selection of the month for our public library's SF/F/H book club. For some reason, it's making me very nostalgic for high school.


Mar. 5th, 2009 01:37 pm
michaeldthomas: (Default)
Happiness is:

Getting the EOB in the mail that confirms that the Easter Seals/insurance kerfuffle has been fixed.

Receiving your new Doctor Who- Key to Time DVDs.

Sunlight and warmth.

A giggly daughter who gets to swing at her school playground.

A raucous SF book club.

Not hating what you wrote.



michaeldthomas: (Default)

August 2011



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