Crazy Week

Jan. 14th, 2010 01:52 pm
michaeldthomas: (Default)
I'm sooooo tired. Cait had one of her stuffy/barfy nights. She's fine now, but it means no school today. Lots of little things are happening around here.

1- [livejournal.com profile] rarelylynne was interviewed by our local paper about the Comic Art exhibit she's curating at The NIU Art Museum. It's pretty neat. I'm just waiting for her Locus interview. ;-)

2- I was digging through my old papers when I found an autographed flier from The Second City touring company event that came to my high school (IMSA) in 1991. I remember getting autographs on the off chance that they became famous one day. As it turns out, one of the autographs is from Paul Dinello (Strangers with Candy). He made it out "To The Special Kids." That's pretty cool. Even cooler, the autograph under his is from STEPHEN COLBERT. I wish I remembered the show better.

3- Cait's Make-A-Wish has become complicated again. As you might remember, we switched it to Disney World after waiting nine months for Demi Lovato. Unfortunately, this change moves Caitlin out of the queue and onto the wait list since they've reached the maximum number of kids for the fiscal year ending in September (they treat your second choice as a brand new wish). If two kids drop out, Caitlin will go to Disney in the spring. If not, we have to wait until September.

4- Lynne will be at ALA in Boston from Friday to Tuesday. This sucks, especially since that means I have to handle the girl by myself during my friend Scott's memorial event on Saturday.

5- A special child Caitlin knew passed away over the break. :(
michaeldthomas: (Caitlin 2)
I’m sitting at Panera writing, and a group of special teens just came in for breakfast. One of the girls is in a similar wheelchair as my daughter. It’s even razzleberry colored like Caitlin’s. I’m on the verge of tears, and I’m not quite sure why.

It’s wonderful to see that we are not alone, but it’s also a bit terrifying. When I was growing up, children like my daughter were mostly institutionalized. Even now, it’s very rare that we see other kids as disabled as Caitlin is when we’re out and about. In some ways, it makes it easier for us to forget how disabled she is. She’s just Caitlin. Seeing others like her and watching how others treat them make it all more real. With that reality comes the dark understandings of my daughter’s future, no matter how much she’s currently thriving.

I also keep getting distracted because that girl is making similar sounds to Caitlin. My brain knows that Caitlin is at school, but my father instincts are locked a certain way.
michaeldthomas: (Caitlin)
There are reasons that I drink gallons of coffee. The last couple of days have been frickin’ exhausting. Wednesday was a doctor day for Caitlin. As most of you know, we live out in the cornfields of DeKalb. Since Caitlin has many rare medical problems and we want to get her the best care, all of her doctors are at Children’s Memorial Hospital in Chicago. This means that her regular appointments with her five doctors are all-day undertakings.

We left the house at 8 a.m. and ventured through traffic and construction to the Lincoln Park neighborhood. Traffic was reasonable so we were there exactly in time for our 10:15 a.m. appointment. Mapquest says that this is 1 hour and 15 minutes trip. Mapquest lies.

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michaeldthomas

August 2011

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