I Miss My Cat

My cat is gone. I keep catching him out of the corner of my eye, thinking that he’s about to jump up to get petted. Joey was a large cat, so it was always fairly thunderous when he made that leap onto the couch or bed. Now there’s nothing.

It was rough this morning. Caitlin had a big seizure at 5:40. After she fell asleep from the Diastat. Lynne and I returned to our bed. That was usually the point that Joey would come to us to give comfort. He always did after Caitlin had a big spasm. Cute and purring, he would just rub on you until you petted him and felt better.

We’ve had a lot of death this year. I lost an uncle, a close cousin, the father of a good friend, a couple of the Aicardi girls, and a very dear friend well before her time. I have absolutely nothing profound to add, I just want it stop happening so damn much.

I ended up taking care of Joey by myself yesterday. It was very difficult. I broke down for a minute or two, and then I got back to business. I did the best I could for him.

I miss him terribly.

Thank you, everybody who gave condolences. It did help.

The Ninth Biennial Aicardi Syndrome Family Conference

Good news, everybody!

After months of sometimes frustrating work, the contract is signed and the announcement has been made to the families.

The Ninth Biennial Aicardi Syndrome Family Conference will be held the weekend of July 11-13, 2008 at the Pheasant Run Resort & Spa in St. Charles, IL.
http://www.pheasantrun.com/

The Aicardi Syndrome Foundation is paying for two nights of hotel stay for each family who has an Aicardi child. They are also paying for two dinner buffets and two breakfast buffets. There will be dozens of speakers on every aspect of our children’s lives. We should have about 90 families there.

I also now have a Co-chairperson. This is a great relief as I was getting a little stressed from the workload.

All of our Illinois friends are officially on volunteer notice. :)