michaeldthomas (
michaeldthomas) wrote2008-03-19 04:44 pm
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Adventures in Caregiving
Real life has been rough for the last two days. Yesterday was our yearly run to the Pediatric Ophthalmologist. Caitlin was in a good mood and behaved for all of the testing. Nothing in her eyes has degenerated any further. Caitlin was also able to show the doctor how well she is using her vision. Considering that the girl has damaged retinas and optic nerves, she’s taking in quite a bit.
We then went to see my grandmother at the hospital. Things are very bad. It was extremely difficult seeing her in that condition. This is not the first time that I’ve been there for a loved one’s end of life, but it’s always a stomach punch. She still recognized me, but she’s otherwise fairly unresponsive. My grandmother is a shell of the magnificent woman that helped raise me.
After that we rushed home and picked up
rarelylynne. I then went to The City of DeKalb Advisory Commission on Disabilities meeting. It seems that the commission will survive the current city budget crisis.
Today I was digging myself out of Aicardi Syndrome Family Conference business. I think that I wrote about 30 emails today. At least everything with it seems fine so far.
We then went to see my grandmother at the hospital. Things are very bad. It was extremely difficult seeing her in that condition. This is not the first time that I’ve been there for a loved one’s end of life, but it’s always a stomach punch. She still recognized me, but she’s otherwise fairly unresponsive. My grandmother is a shell of the magnificent woman that helped raise me.
After that we rushed home and picked up
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Today I was digging myself out of Aicardi Syndrome Family Conference business. I think that I wrote about 30 emails today. At least everything with it seems fine so far.